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‘Exercise Effect in MG’ Pilot Study

Exercises at Home

Doctor Jennifer Nitz, who conducted the ‘Exercise Effect in Myasthenia Gravis’ Pilot Study at the University of Queensland’s Neurological, Ageing and Balance Clinic, has kindly provided the Association with a booklet entitled ‘Preventative Health – Exercise for your Bones, Strength and Balance.’


Collecting data on sufferers of myasthenia gravis

As highlighted in the last Project Update, the response to our survey has been overwhelming and the Medical Fraternity are keen to explore some of the statistics further so to assist we say again that we want more sufferers (especially younger ones) to complete the questionnaires. If you can spread the word please do.


Next Function

Our next function will be a ‘Picnic in the Park’ at the North Pine Dam picnic grounds, Petrie, on Sunday 10 March 2013.

More details will be available in the new year.


2012/2013 Management Committee

All 2011/2012 Management Committee members have been re-elected, unopposed, to their respective positions for the 2012/2013 year.


Jingle Bells, Jingle Bells

The Christmas Get-Together will be held on Sunday, 9 December 2012 at 11am at Quarterdeck Restaurant, Caloundra Powerboat Club, Woorim Park, The Esplanade, Golden Beach.

'Exercise Effect on MG' Pilot Study

Preliminary results were presented by Professor Jennifer Nitz at the Annual General Meeting on September 9. The DVD of her presentation will be available in the coming weeks.

Again, it is not too late to join the Study and if, after viewing the list of the exercises published in the March newsletter, you now feel inclined to join the study, and live in the Brisbane area, please contact the Secretary. (We have one new participant who has commenced the exercise program.)


Collecting data on sufferers of myasthenia gravis

Dr Blum presented preliminary results of the survey at the AGM. He spoke warmly of the experience of sharing our journey and commented on points of interest from both a physician’s point of view and a sufferer’s view of living with this condition. The research showed how difficult it is for a GP to diagnose the condition due to the wide variety of initial symptoms. It also showed the strong link to other auto-immune conditions.


ABC News Feature

Myasthenia Gravis has been featured on ABC News to help raise awareness. You can take a look at the segment by clicking here.


2012/2013 Management Committee Nominations

All current Management Committee members have been nominated, and accepted nomination, for their respective positions for the 2012/2013 year.

As no other nominations were received, those nominated will be appointed at the Annual General Meeting on 9 September.


Data Survey on persons with MG

Work has now begun preparing a preliminary report on the data analysis undertaken to date. This preliminary report will be delivered to us in a presentation given by Dr Blum at the AGM in September. If you have not yet returned your survey and wish to be included in this round of data, it is not too late but do be quick. Surveys received after this initial report will, of course, still be as valuable as this is just a taster.