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MAA UPDATE

MAA UPDATE

Posted on Thursday, June 30 2022

June Awareness Month was extended! 
How exciting that there is a huge push across the nation for greater Awareness of Myasthenia Gravis. It happened in June with wonderful Light Ups across Queensland and in other cities throughout Australia. This is definitely a growing campaign. Well done to the MGAQ for adding new sites again this year and for having signage prominently displayed on the Story Bridge in Brisbane and on the Bruce Highway at Glenorchy (South of Maryborough). 
 

So how are we progressing in the field of research?
The latest project “Covid Impact on Myasthenia” is off to a fantastic start with 90 completed surveys. Feedback resoundingly agrees that this survey is quick and easy to complete and very relevant for everyone with Myasthenia. It is definitely not just for those who have experienced Covid. These numbers mean that we are half way to the targeted 200 responses. The survey will close off in mid-July so be sure to participate and maintain our strong reputation of interest in fostering best care outcomes for people with our condition. Help the Doctors help us! 
Join here https://redcap.alfredhealth.org.au/redcap/surveys/?s=WXWKWDM4CMPAJH4N

Susan White- MAA Chairperson

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