Dear Myasthenia Patient,

Myasthenia Alliance Australia and the research team at Monash University invite you to take part in an online survey about treatment preferences during mild exacerbations of myasthenia gravis.

What this study is about
During a mild exacerbation, treatment options differ in how quickly they help, their side effects, and the time, travel, and cost involved. These choices can greatly affect daily life with MG.

We are running a survey co‑designed with people living with MG to understand which treatment features matter most. Your participation is vital; by sharing your experience, you are helping ensure future care better reflects what truly matters to patients.

Who can take part
Adults (18+) with a diagnosis of myasthenia gravis.

What taking part involves
If you agree, you will be asked to:
• Read the Explanatory Statement and give consent online.
• Complete a questionnaire about (your preferences, background, treatment history)

The whole survey takes approximately 20 minutes.

Payment
As a thank you, participants will receive a $20 AUD e-gift card on completion.

How to take part
To read more and complete the survey, click the link: https://enter.surveyengine.com/r.156e.e1f6.dtdvs0gm6ht2gv270p54vmdnm7fb6bho8mhqpcb10ech2oubtfmr12qjegboinvp0bviav8tn99kiusfh483b6p39t8pia4m6hr19nous1vie2d37qfg9v3r4annqkp5g567vtu2fcii6rs3kkru9ucv6j43ejlq9v1r7ca7scc8abgmpgbo8qd5j9n335sv2f7bhtvb7501q

If you are part of the VALUE‑MG study, you may have already completed this survey. To avoid duplicate responses, please only complete the survey once.

Kind regards,
MAA representative