MAA MG CONFERENCE COMPETITION WINNER

Posted on Saturday, 29 February 2020

THE WINNER OF THE KITCHEN BUNDLE OF ENJO PRODUCTS IS... JODY

"Personal highlight was my husband joined me and WOW the day was so insightful for him.  As we live six hours away from my specialist, run a business, have a family, we rarely have the opportunity to travel together to do weekday appointments.  So to educate him 8 years after a diagnosis was such an eye opener.  A weekend together with MG being our primary focus was a first for us. He walked away with a new appreciation and understanding of the disease.  It allowed my hubby and I to go crap this is bloody hard and it is a fight everyday to just wake up and start again and see what the day might bring.  Mg impacts my life on a daily basis.  Every movement, every outing is calculated and planned and risks are accessed.  He has a new respect for the days I do get out of bed and for pushing myself when and where I can.   He learnt it was good to push the barrow as long as I listen to my body. My husband was constantly worried about me overdoing it and would rather cover me in cotton wool than to let me walk to the beat of my drum on those days where I feel I am capable. 

"Which leads me to my highlight, meeting Professor Blum.  He was my wow factor.  I am grateful he attended and really added clarity when he articulated that point beautifully.   Push yourself to do what you can without overdoing it.  

"I am forever grateful for a number of things we both learnt. Thank you. Keep up the wonderful job.  Forever in your debt." – Jody