MYASTHENIA GRAVIS ASSOCIATION OF QUEENSLAND MID-YEAR FUNCTION

Posted on Saturday, 20 July 2019

To celebrate Awareness Month the Committee again hosted a function on Sunday, 9 June allowing people with Myasthenia to gather together and to share. Well attended by regulars and by first timers, we gave hugs, wore teal ribbons, won lucky door prizes, shared a meal and conversation and came away much better informed.

Tracey Shaw from Carers Qld, spoke with kindness as she discussed the importance of supporting the people who support those with Myasthenia. It is estimated that 2.7 million Australians are unpaid carers. This care can be given at many levels but it may bring emotions of grief and loss, it may cause stress and burn out, or foster a sense of isolation and possibly even involve issues around family conflict. Carers are important advocates for sufferers. Carers need support too and this is the role of this organisation. In Qld call 1800 052 222 to learn more.

Tracey focused on the importance of preparing for the future and explained how the NDIS is there to support people to live well once permanent disability (physical or mental) is established. Support is life long provided the application process is commenced prior to 65. Applications are evaluated very much on an individual basis. It is not condition based. Using a trained provider in making an application is recommended. After 65, care is provided through “My Age Care” and relies on QCAT assessments facilitated through a GP. Other supporting legal documentation was also discussed. The talk was recorded, members are encouraged to view the DVD or listen to the talk on a CD player.