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1May

Immunosuppression

“Survey Snippet"

Immune therapies have been used for myasthenia since the 1960s, when Prednisone was first described. A range of other therapies have been introduced since.

It appears that the majority of the survey respondents receive immunosuppressive medications. Prednisone is by far the most popular choice with around 60% using this drug, followed by Azathioprine with 30%. All other treatments register less than 10%. Prednisone seems to have such a bad reputation yet when...

13Apr

Notice of Cairns Meeting

A meeting is arranged for existing members and newly diagnosed patients of Myasthenia Gravis in an informal atmosphere at the Cairns RSL Club Boardroom followed by lunch for those who wish to stay on after the meeting. Lunch will be at own expense and we would like an indication of your intention to stay for lunch so that an appropriate reservation can be made. We look forward to seeing existing members and meeting new members and their carers.

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1Mar

Picnic in the Park

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1Mar

‘Exercise Effect in MG’ Pilot Study

Exercises at Home

The results of the Study are in the process of being fully documented and written-up formally and will then be available for the world to see.

We will advise when the MGAQ receives its copy and make it available to read to all interested members.

Doctor Jennifer Nitz, who conducted the Study at the University of Queensland’s Neurological, Ageing and Balance Clinic, has kindly provided the Association with a booklet entitled ‘Preventative Health –...

1Mar

Urgent Notice

Valeant Pharmaceuticals, the Australian supplier of Mestinon© has advised of a severe shortage of Mestinon© 60mg tablets In fact, they are out of stock. It is suggested that members who are prescribed 60mg Mestinon contact their chemist to check on their stock situation. Supplies are not expected to return to normal until mid-March. Supplies of 10 mg and 180mg TimeSpan Mestinon© are not affected.

27Dec

Next Function

Our next function will be a ‘Picnic in the Park’ at the North Pine Dam picnic grounds, Petrie, on Sunday 10 March 2013.

More details will be available in the new year.

27Dec

‘Exercise Effect in MG’ Pilot Study

Exercises at Home

Doctor Jennifer Nitz, who conducted the ‘Exercise Effect in Myasthenia Gravis’ Pilot Study at the University of Queensland’s Neurological, Ageing and Balance Clinic, has kindly provided the Association with a booklet entitled ‘Preventative Health – Exercise for your Bones, Strength and Balance.’

The booklet details exercises which closely match those which were undertaken by participants in the abovementioned Study and are such that they can be undertaken by...

27Dec

Collecting data on sufferers of myasthenia gravis

As highlighted in the last Project Update, the response to our survey has been overwhelming and the Medical Fraternity are keen to explore some of the statistics further so to assist we say again that we want more sufferers (especially younger ones) to complete the questionnaires. If you can spread the word please do.

We are also quite excited by the idea of publishing a small book to tell of sufferers experiences with the condition and would love to hear from anybody interesting in...

12Oct

2012/2013 Management Committee

All 2011/2012 Management Committee members have been re-elected, unopposed, to their respective positions for the 2012/2013 year.

12Oct

Jingle Bells, Jingle Bells

Jingle Bells, Jingle Bells

Ho! Ho! Ho!, it’s that time again - time for our annual Christmas Get-Together, so come along and have a great day with lots of fun and good company.

WHEN:Sunday 10 March 2013
TIME:10:30am onwards
WHERE:North Pine Dam – Harrisons Pocket Picnic Grounds UBD Map 87 Ref L19

WHEN:

Sunday 9 December 2012

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