News and Events

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1Apr

Myasthenia Alliance Australia Conference

There are still limited spaces available for the Myasthenia Alliance Australia Conference to be held in Sydney on 20 June this year. It is a full day program with an interesting and knowledgeable range of speakers. It is also a great opportunity to network with other Myasthenics and their supporters.

1Apr

MGAQ Needs Your Help

The MGAQ needs to raise over $20 000 on an annual basis in order to maintain its present level of service in Member Welfare, Research, Advocacy and Awareness. If you, a family member or a friend knows a senior person in a company which has the potential to donate $2 000 per year which will be spent entirely on supporting the sufferers of MG, please contact us on 1800 802 568. Please think seriously about how you might be able to engage support for the ongoing operation of the MGAQ.

1Apr

Publication of Medical Paper as a Result of the Members’ Survey

Dr Stefan Blum has confirmed that the Myasthenia Survey Paper has now been accepted for publication in the “Journal of Clinical Neurosciences”. This is wonderful news as information about Myasthenia Gravis is being published in a very well-respected medical journal. Both Dr Blum and Dr McCombe are still committed to progressing research based on the survey data.

2Mar

Anonymous Donation

The MGAQ gratefully thanks the anonymous member for the donation to be used by Professor Pamela McCombe (RNWH) for the express purpose of supporting DNA testing. The database for this research has resulted from the survey project. This wonderful gesture has allowed further work on an important aspect that was highlighted in the survey data.

2Mar

Upcoming Events

Meet the Members Picnic Gathering at MacIntosh Island, Main Beach Parade, Surfers Paradise from 10.30am on Sunday 15 March. Look for the MG banners to find us. We look forward to seeing you there.

Get Together for Mackay members on Sunday 10 May. Venue to be advised.

2Mar

Myasthenia Australia National Conference

The Alliance Committee is very proud to confirm that the first National Conference for Myasthenics, their supporters and health professionals will be held at The Brain and Mind Research facility at Camperdown, Sydney on June 20 of this year. Registration is now open and will close promptly on 31 March. The draft registration form is available on this website in the February newsletter. Please follow the instructions listed on the form when completing same.

27Feb

Australian National Conference Registration

The first Australian National Conference for Myasthenics is confirmed to proceed on June 20th in Sydney. Registration is now available by contacting us. Proceed to the Contact Us page to request further information and a registration form.

20Jan

Research Paper

Please visit www.mgaq.org.au to read the published paper from research undertaken by the University of Queensland Physiotherapy Department. Volunteers for this research came from our members. Generous funding via a bequest supported this project.

We have also been notified that a paper emanating from the survey is due for publication soon.

20Jan

Myasthenia Alliance Australia

The website for the national alliance is www.myastheniaallianceaustralia.com.au and we encourage everyone to have a look at it. We must also acknowledge the legal pro bono work and tremendous support given by Ron Eames with Law Firm, Holding Redlich of Brisbane.

20Jan

Upcoming Events

  • 21-Jan-2015 - MG Get-Together Townsville
  • 15-Mar-2015 - Picnic in the Brisbane region

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