News and Events

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30May

Reporting Requirements

The Service Agreement between Queensland Health and the MGAQ provides certain conditions which the MGAQ must meet in order for funding from Queensland Health to continue. Subsequently, the Secretary and President met with Queensland Health officials in late April and feedback from that organisation is that the MGAQ is performing in accordance with the Service Agreement.

30May

MG Awareness Month

June is MG Awareness month for Australia. So why not get together with a few of your friends and make them more aware of what MG is and the affect it has on your everyday living.

26Apr

Help! Help! Vacant Treasurer's Position

Anyone who is interested in putting their hand up for the Treasurer’s position, please, pretty please, contact Acting Treasurer, Susan White, or our President, Graeme Peters. Once again we remind our members - No Treasurer means No MGAQ.

26Apr

Updated Chat List

A reminder those members who are prepared to have their contact details on the revised Chat List to please advise via email to info@mgaq.org.au, or telephone Freecall 1800 802 568 or by letter, of their Full Name (Surname will not be listed), contact phone number and location, i.e. Suburb or town name. It would be appreciated if this information could be forwarded by 30 April 2016. Only those members who respond to this request will be placed on the new...

26Apr

MG Awareness Month

"MG Awareness Month” is June! Do think about how you can spread the word to raise awareness of this rare disease? This is a month to acknowledge yourself and the challenges you face. Perhaps just meeting up for coffee with friends and family would be a treat.

19Apr

Guest Speakers

Two eminent people have kindly accepted an invitation to be Guest Speaker at MGAQ events in 2016. Neuro-ophthalmologist, Dr Anthony Pane from the Queensland Eye Institute, will give a presentation to the mid-year function on Sunday 12 June 2016. And Ms Megan Fookes OAM, Advisor Policy and Stakeholder Relations for Rare Voices Australia (the not-for-profit organisation which advocates for people who have a rare disease and MG is classified as a rare disease) will present at the AGM to be held...

10Mar

Future Planned Activites

Sunday 13 March 2016 Picnic Brisbane – Robell Domain, Springfield Central

Sunday 12 June 2016 Mid-year function – venue and Guest Speaker TBA

Sunday 11 September 2016 Annual General Meeting – venue and Guest Speaker TBA

Sunday 11 December 2016 Christmas function – Gold Coast – venue TBA

10Mar

"Journey with Myasthenia Gravis" - A Book by Sarah-Jane Fleer

Due to the recent and significant price increases from Australia Post the fees charged to post out the “Journey” book will rise from $5.00 to $6.50 from 1 April 2016. If you are thinking about purchasing a copy, now would be an advantageous time to do it and save yourself from paying the increase in postage.

10Mar

Email Addresses of Current Financial Members

As the age of technology further embraces us, we ask that members notify us of their email address so that we might get information to them in a more timely fashion. The request is entirely voluntary, and your email address will only be used for contact between the Association and yourself. It will not be disclosed to any other person or organisation. The newsletter will not be emailed to you unless you have requested it. If you are willing to provide your email address, please email the...

28Jan

Availability of Mestinon

Some members have expressed concern about the non-availability of Mestinon 60 at their local pharmacies. The MGAQ has been in touch with Valeant Pharmaceuticals who have informed us that they expect stocks to be made available to the wholesalers by the end of January and then pharmacists can order them in the usual way.

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