WHEN: Sunday 10 June 2018 - 10am for 10.30am start.
WHERE: Southern Cross Sports Club, Corner Klumpp and Logan Roads, Mt.Gravatt (vehicular entrance is from Klumpp Rd). Lunch is available at the venue with a varied and reasonably priced menu.
WHAT DO I NEED TO BRING? Yourself and whomever else you wish to bring along – the more the merrier.
HOW DO I GET THERE? UBD Map 201 Reference D7.
The drug Rituximab, otherwise known as MabThera, appears to be a more regularly considered treatment option for people with Myasthenia Gravis.
Access to this drug varies greatly depending on each individual situation.
The Myasthenia Alliance Australia Committee is interested in learning more about accessing difficulties Australians are facing.
We ask that anyone in Australia who has been offered, or is currently receiving this drug treatment, please complete this…
The Myasthenia Gravis Assocation of Queensland Inc, will be holding its June meeting on Sunday, 10 June, 2018 at 10.00 am, at the Southern Cross Sports Club, Cnr of Logan Rd & Klumpp Rd, Mt Gravatt. Come along and meet with fellow Myasthenics, plus anopportunity to hear our guest speaker, Mrs Katrina Williams, Lecturer in Physiotherapy, School of Health and Rehabilitation Sciences, talk about Exercise and Myasthenia. A video recording will be taken for distribution to paid up Category A…
Our present Management Committee consists of nine persons. A simple majority (i.e. 5 persons) of the committee members must be sufferers of Myasthenia Gravis.
As stated in our constitution, all members of the committee must retire at the Annual General Meeting, but are eligible for re-election, if they accept a nomination.
Any financial member of the association may nominate another financial member to serve as a member of the management committee. The nomination must be in…
Readers may remember Linnea who was a joint winner of the Des Zeimer Memorial Scholarship for Primary School Students awarded in May 2017.
Linnea has written to tell us that she spent her prize money on Art Classes.
This is a great joy for her and a wonderful choice.
We very much appreciated her sharing the news with us and hearing that she is keeping well at present.
The management committee feels it is important for members from across the state to meet and chat with some of our committee.
Therefore, over a period of time, two members from the management committee will travel to each of the areas.
The regional co-ordinators will negotiate with the committee re the most suitable time of the year and these will be advertised in the newsletter. The first round is listed below.
- Bundaberg, 6.00pm, Friday, 6 April - The…
We are trying to focus on what people can do rather than what they cannot do and thus have added a section in the newsletter. on page 5. We hope that people take the time to share their successes and happy times. Participation can occur in a range of ways. Send via post or email, photos or stories of what you have enjoyed doing. If you are a member of the Facebook group you can post here. Your stories and photos are sure to surprise!
Do look out for events which may be occurring in your area. You may like to read more about rare diseases and the campaign in Australia to support people who fall into this group http://www.rarevoices.org.au.
The management committee feels it is important for members from across the state to meet and chat with some of our committee. Over a period of time, two members from the management committee will travel to each of the areas. See Page 8 of the newsletter for more information.
Learn about the benefits of being a member of the MGAQ. See page 3 of February's Newsletter.