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Many, Many Thanks Shirley

It is with great sadness I tell you that our wonderful welfare officer, Shirley, has decided to not remain a member of the management committee from the end of last year. We all know Shirley as the caring, knowledgeable voice at the end of the 1800 number, but Shirley also has a long history with the association. Shirley will certainly be missed as a valuable committee member.

eNID Project

This project has been discussed in previous newsletters but now a full explanation has been provided by Dr Reddel in the December newsletter. The Myasthenia Gravis Association of Queensland and the Australian Myasthenic Association of NSW are focused on helping to raise funds for the coding work. Donations via both Associations are tax deductible.

MGAQ Student Scholarship

The MGAQ is proud to announce two scholarships to be awarded in May this year. One scholarship will be awarded to a primary school student and the other to a secondary school student. Students are asked to communicate “How Myasthenia Gravis Plays a Role in My Life”. See the December newsletter for further details.

Australian National Conference for Myasthenics

Discussions have indeed commenced in preparation for hosting a Conference in Sydney in 2017. It is hoped that a date will be secured prior to the end of this year. An Alliance Alert will be issued as soon as this information becomes available.


Christmas Get-Together

Sunday, 11 December 2016, 11am for 12 noon at Southport Sharks Club, cnr Musgrave and Olsen Avenues, Southport. Please phone Shirley on 1800 802 568 if attending. We look forward to seeing as many people as possible there.

MGAQ has set up SMS Alert

We hope this could be a very valuable tool for the Association to use in future to advise our members of such things as Mestinon shortages. If we do not have your mobile number and you would like it (or a family member's) added to the list to receive the SMS alert, please contact Shirley on 1800 802 568 or email


Help! The MGAQ Needs a Secretary

Your association is in need of a Secretary. One of our management committee members, Anita Jackson, kindly put up her hand to be Secretary so that we met all of the legislative requirements as an association. However, she will only carry out the requirements of that position until we find a permanent secretary. Remember that members of the management committee do not have to have MG.

Survey Update

Professor McCombe continues to receive completed surveys returned to the RBWH and has provided the support to have all the data from these surveys entered and available for analysis. It takes, on average, two hours for each survey to be fully entered. This is a very significant endorsement of the value of this survey work and indicates that it is important for people to still take the time to complete and return their survey.

News from around Queensland

In the lead up to Christmas many of the local groups have organised get-togethers. Please read about your local area in the newsletter to find out what is happening and, if you cannot make it, the local co-ordinators can usually meet with you for coffee and a chat. Also, please remember our 1800 802 568 number where you can talk with Shirley.

DVD of Presentation by Nicole Millis

All current financial members will receive by post a DVD with Nicole Millis' presentation to the AGM. Nicole is Executive Officer of Rare Voices Australia and her bio appeared in August's edition of MessaGes.