News

If you have the passion and drive, we’d like you to join the MG Vic Management Board. As a Board member, your voice will help improve the lives of Victorians living with MG.

If you’re interested, please tell us about your experience with MG and how you believe you could assist plus your work background skills.

The Myasthenia Alliance Australia is partnering with OPTIMAL NHMRC Centre for Research Excellence in improving immunoglobulin use, and we invite you to join our upcoming webinar on Myasthenia Gravis. 

Date: Monday 24th November 2025

Time:

How do we truly understand what life is like for someone living with myasthenia gravis?

In this insightful webinar, Dr Carlo Antozzi, Senior Neurologist and Head of the Neuroimmunology and Neuromuscular Diseases Unit at the Besta Neurological Institute in Milan, takes us inside the evolving world of MG care - one where patients’ voices are finally being heard as loudly as the data.

Myasthenia Alliance Australia (MAA) are delighted to invite you to an informative webinar with Nurse Practitioner Jenny Stofmeel.

🗓️ Tuesday 28th October 2025

⏰ 5:30pm – 6:30pm AEST

Another opportunity to share your experience and preferences about treatments – make a PBAC submission for Vyvgart® in subcutaneous injection form

The MAA would like to hear from ALL Australians diagnosed with CMS. We need to capture your numbers (parents/guardians can respond on behalf of children). We also want to learn about your experiences here in Australia regarding accessing Ruzurgi/Amifampridine/3,4-DAP as a treatment option.