A Book of Personal Stories, written by Sarah-Jane Fleer and produced by the Myasthenia Gravis Association of Queensland Inc.
Made possible with the support of the Queensland Department of Health.
‘Journey with Myasthenia Gravis’ was born from a suggestion by a thoughtful specialist to a husband of a long-term myasthenic sufferer. When put to the MGAQ, the exitement began to grow.
First an author was found who keenly and compassionately gave of her time. Volunteers willing to share such personal stories came forward enthusiastically hoping to help others.
The editor and designer crafted the project with the necessary skill, care and commitment to create an engaging journal. A renowned artist embraced the opportunity to share his joyous work bringing to the cover a positive feeling. His gallery staff bent over backwards to ensure the cover could be prepared on schedule.
This book must be dedicated not only to those with Myasthenia Gravis but also to those who have made it a reality. Everyone touched by this project has embraced the power offered in the telling of these stories of being diagnosed with and treated for a rare chronic condition. Readers will have the opportunity of understanding the importance of sharing the experience of living with a rare condition.