The first way to explore making contact with others is to download a copy of the newsletter and find the Association details plus a list of events and meet ups and your local coordinator’s contact information. Call the 1800 802 568 number to speak with the Association's Information Officer. This phone is managed by someone who lives with Myasthenia and who represents the Association. Informative, supportive conversation is provided to sufferers, carers, relatives, friends, health professional and anyone with an interest in Myasthenia Gravis.
Information found in the newsletter will refer to the following: -
Some members are willing to take private phone calls. Contact the Information Officer for more details.
Yes. The Myasthenia Gravis Association of Queensland Inc. produces a monthly newsletter with the exception of January. Members have the option to receive the newsletter by mail or receive an electronic version by email.
Latest events both at State and National level, items regarding research and pending conferences plus general sharing of news and support are included in this newsletter. It is our primary form of communication and feedback suggests it is welcomed each month. MGAQ newsletters from the past several years can be found on the website.
The website is easy to navigate and packed with useful information and support. Recently and regularly updated it is essential to explore past the Home page.
The Resources section where much of the MG information is accessed or highlighted. MGXplained and the Information Booklet provide variety of presentation for effective learning about this condition.
The Member Exclusive section includes a library section to access papers, books, DVDs, Podcasts and Vodcasts of the Association’s presentations.
The Newsletter Archive brings a wealth of news and events plus ways for you to participate in current research projects
The Facebook Closed Discussion Group for support
The 'Journey with Myasthenia Gravis' book gives handy tips to family and friends whilst highlighting just how varied life with myasthenia can be.
Membership both new and existing, can be done online for your convenience or forms can be downloaded as preferred by members.
Medi-Alert Wallet Cards can be ordered.
A wide range of questions is answered in the FAQ section.
Follow latest research news with reports and updates.
On-site Registration for updates and news is available to members and non-members. Simply provide an email address and stay informed.
Use the 1800 802 568 Freecall number to reach the Information Officer, attend to general admin services and access hardcopy resources. This can also be done via firstname.lastname@example.org
Approximately 10-15 out of 100,000 individuals in Australia have been diagnosed with MG. However, MG is considered under-diagnosed and the prevalence is thought to be much higher. Myasthenia Gravis is considered a Rare Disease. Doctors estimate that 2,500 Australians are diagnosed with a Myasthenia condition.
The most common age at onset is the second and third decades in women and the seventh and eighth decades in men. As the population ages, the statistical average age at onset increases correspondingly; with males now more often affected than females.
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