“Who would have thought ……..” is my catchcry! It has been an amazing ten years of new, interesting and purposeful experiences where we are confident that we have made a difference for the Australian Myasthenia community.

It has also been a joy to work with such wonderful team members. A small but mighty group. Each volunteer offers so much to this organisation and they offer so much of themselves and their time.

There is great potential for the future endeavours of the MAA.

Susan

After a very detailed and concise planning process the Myasthenia Alliance Australia (MAA) was founded in 2014. This group, which had a clear focus on the national agenda, was made up of the incorporated state associations.

As a foundation member of the MAA I have seen it grow from very humble beginnings to a highly strategic group with strong affiliations with government, pharmaceutical companies and other not-for-profit advocacy organizations.

The work of this alliance cannot be underestimated. The work with the state associations to raise needed funds for the ‘build’ of MGBase, the ongoing advocacy with members of parliament in relation to the provision of services and products for people living with MG, the ever-increasing recognition by pharmaceutical companies, the strong affiliation with both internationally and nationally recognised lead neurologists and the involvement in a wide breadth of research are just a broad indication of what the MAA has, and continues to, achieve.

I am very proud to have been a part of such a widely-recognised and proactive small group of individuals constantly working to improve the lives of people living with MG and their families. I know that the MAA will gain further recognition into the future.

Carol

As a founding member, starting out I did not know what to expect, but very pleased we are still going strong and are supporting the MG community.

Glenda