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Posted on Wednesday, May 01 2024

Our Guest Speaker for the June Awareness Function is

Associate Professor Jan Sansoni

Myasthenia Gravis Research: 
Capturing Health Outcomes and Patient Perspectives

Associate Professor Jan Sansoni was the Director of the Australian Health Outcomes Collaboration (AHOC) and a Principal Research Fellow at the Australian Health Services Research Institute at the University of Wollongong (1997-2019). Earlier she was the inception Director of the Australian Health Outcomes Clearinghouse at the Australian Institute of Health and Welfare 1994-1997. Since her retirement in late 2019 she has held honorary appointments as an Associate Professor at both the Australian National University (ANU) and the University of Wollongong (UOW).
Associate Professor Jan Sansoni has undertaken substantial research work in patient assessment and outcomes evaluation and monitoring during her career. She was the lead author of the recently published paper (2023) concerning the national Australian survey of Myasthenia Gravis patients (2022). Earlier Jan was the project manager for the national Dementia Outcomes Measurement Suite Project (Sansoni et al. 2007) and was a member of the dementia working group for the International Consortium for Health Outcomes Measurement (2014-2016) which designed an international outcomes measurement suite for dementia - building on her earlier Australian work in this field. She was heavily involved in the redesign and redevelopment of the assessment system for access to Commonwealth aged care services in Australia (Sansoni et al. 2012), and with the national field testing of a new assessment tool for aged care (Sansoni et al. 2013). She has authored many journal publications and produced numerous reports on research undertaken on behalf of Health Departments throughout Australia.

Associate Professor Janet Sansoni has been involved in the development and evaluation of patient-reported outcome measures and measurement suites for a broad range of health conditions including those associated with chronic health conditions and in the development and revision of measurement tools and indicators used in both outcome evaluation and client assessment.

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