Many people with myasthenia gravis report that heat and hot weather exacerbate their symptoms and impact their daily lives. However, little research has been performed to understand the exposures that trigger worsening symptoms or the broader impacts on daily life for individuals with myasthenia gravis.

The Myasthenia Gravis Association of Queensland (MGAQ) is collaborating with the Queensland University of Technology to improve our understanding of how heat and hot weather affect people with myasthenia gravis. We are seeking adults aged 18 or older with myasthenia gravis to share their experiences of how heat and hot weather affect their lives.

You can access further details about the study and the survey by clicking this link.

This research will help to shed light on heat sensitivity in people with myasthenia gravis and provide evidence to support advocacy and awareness campaigns.

QUT ethics approval #10508