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Social, personal and professional Impacts highlighted in lived experience survey

Social, personal and professional Impacts highlighted in lived experience survey

Posted on Monday, April 14 2025

Late last year, many people in our community participated in a survey conducted by Alexion Pharmaceuticals about the impact of generalised Myasthenia Gravis (gMG) on daily life and experiences with healthcare professionals. 
 
The survey found gMG has a significant impact on people’s social, personal and professional life with one in two retiring early. Restricted social life, loss of independence and the ability to plan activities were the most reported impacts.

Seven in ten people said they would like more support from the healthcare system. Help to manage flareups and better understanding of daily life with gMG from their specialist were top priorities. 

Read more in the summary below

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