News

“Tell us about your unexpected highlight from attending the 3rd National Myasthenia Conference!”

This competition is open to everyone who attended the conference. All attendees will be notified of this opportunity.

The prize offered by Enjo Australia, Conference Sponsor, in conjunction with the MGAQ is an Enjo Kitchen Bundle valued at $179.00.

Please write a response to this question and submit it to info@mgaq.org.au or post to PO Box 1287, New Farm 4005 by 10 December, 2019.

To support the MGAQ Organisation

Meeting Host - Make a home available to host up to 11 attendees at monthly committee meetings. Meetings held every 2nd Saturday of the month (except January) from 8.30am-3.30pm. Requirements include 35 minute access to airport, landline facility (no significant costs), reasonable parking access. Not necessarily a Committee person. Back-up venues available if needed.

URGENT - POSITION VACANT ON EXECUTIVE.

Legislatively, we MUST have a Secretary for the association.  This person does not have to be highly skilled as the hand-over of responsibilities will be staggered with much support from other committee members. We are looking for someone who is prepared to accept responsibility, meet required timelines and is prepared to communicate in a timely manner with other members of the committee via phone calls and email.

MINUTES SECRETARY URGENTLY NEEDED.

The job would entail attending the meeting, writing and distributing the minutes, emailing people to remind them of their commitments from the previous meeting and that they need to write and distribute their reports for the next month’s meeting

Then, prepare and distribute the agenda for the next meeting.

If you can help with any of this position, or register your interest, contact
Freecall: 1800 802 568 or Email: info@mgaq.org.au

The committee has established a lending library of MG and related information resources. 

The collection is small but is expanding over time.

Loans of material are available to financial members of the Association and the loan period is 1 calendar month. 

Postage out is paid by MGAQ and return postage is the responsibility of the member.

To request a loan, please contact John on (07) 3293 4655 or Email: jam3740@bigpond.com

URGENT – POSITION VACANT ON EXECUTIVE.

Legislatively, we MUST have a Secretary for the association.  This person does not have to be highly skilled as the hand-over of responsibilities will be staggered with much support from other committee members. We are looking for someone who is prepared to accept responsibility, meet required timelines and is prepared to communicate in a timely manner with other members of the committee via phone calls and email.

MINUTES SECRETARY URGENTLY NEEDED. 

The Myasthenia Gravis Association of Queensland Inc.

Annual General Meeting

WHEN: Sunday, 8 September - 10.00am for 10.15am sharp

WHERE: Aspley Hornets Football Club, 50 Graham Road, Carseldine

Lunch is available at the venue with a varied and reasonably priced menu. Tea and coffee will be available prior to the meeting.

After months of planning the 2019 MAA Myasthenia Gravis Conference was huge success! Such a lot of energy and conversation went into reaching out across Australia with New Zealand captured as well. The result was 147 registrations, reaching full capacity for our volunteer team.

The room looked great, the energy reverberated, and the presentations came quickly. It was a very special day for people with a rare disease to come together and realise that they were not alone.

Feedback from the day reflected the warmth and generosity offered by an amazing group of Specialists who shared their knowledge and compassion. Conversation from these Doctors included helping us to understand how Rituximab works, why there is a tightening guideline to IVIg prescriptions and why patients should not be fearful, what is Therapeutic Plasma Exchange, and can it be a possible option for some patients.

Myasthenia Gravis Friends Western Australia

Coffee & Chat 

Sunday, 11 August at 2 pm - Pinnacles Restaurant

(upstairs in Myers) 200 Murray Street, Perth