News

The booklet “MG Xplained” is a wonderful resource that has been uploaded to the MGAQ website.  This resource was not produced by the MGAQ, but we were very lucky that CSL Behring sponsored the production of this very user-friendly, easily understood explanation of Myasthenia Gravis.  We wish to thank CSL for this wonderful support of such a worthwhile project.  The association also acknowledges the work of Dr Stefan Blum, who advised throughout the writing and production to ensure that all the information contained within was accurate and relevant.

Rare Disease Day takes place on the last day of February each year, this year being 29 February, with the main objective to raise awareness among the general public and decision-makers about rare diseases and their impact on people’s lives. Organised by Rare Voices Australia.

The Drugs to be Used With Caution information has been formatted into a wallet card containing members personal details as requested. This item will replace the previous Medi-Alert Card.

The online application can be found at: https://mgaq.org.au/request-for-medi-alert-card

An application form will be included with this newsletter or can be downloaded at anytime from the website:

Susan White, MAA President, is delighted to be attending the Parliamentary Event to be held in Canberra, on Wednesday, February 26th in celebration of Rare Diseases Day. Dr Mike Freelander MP, Mr Trent Zimmerman MP and Rare Voices Australia will host the day. Health Minister, Greg Hunt, is to launch the National Strategic Action Plan for Rare Diseases. It will be a significant day.

THE WINNER OF THE KITCHEN BUNDLE OF ENJO PRODUCTS IS... JODY

Consistent with its Rules the MGAQ, through its Management Committee, has always had a focus on growing the benefits available to its member community.

One of its present projects, which shall be released progressively through 2020 and beyond, involves the production of a group of audio and video podcast series. The project targets enhancing the knowledge and awareness of MGAQ members about myasthenia gravis (MG) and on approaches for how best to live with MG.

Susan White, MAA President, is delighted to be attending the Parliamentary Event to be held in Canberra, on Wednesday, February 26th in celebration of Rare Diseases Day. Dr Mike Freelander MP, Mr Trent Zimmerman MP and Rare Voices Australia will host the day. Health Minister, Greg Hunt, is to launch the National Strategic Action Plan for Rare Diseases. It will be a significant day.

Coffee & Chats are a good opportunity to connect with people in your area. All are welcome.

For more information, contact Anita on 0414 588 312

 

2020 MGAQ "Coffee & Chats" has been a successful opportunity for people with Myasthenia Gravis or their carers to connect with others in the Brisbane area.

We are now planning for 2020 and would like to know which of these venues you would attend.

Brisbane North

Brisbane South

Brisbane West

Inner Brisbane

Logan

“Tell us about your unexpected highlight from attending the 3rd National Myasthenia Conference!”

This competition is open to everyone who attended the conference. All attendees will be notified of this opportunity.

The prize offered by Enjo Australia, Conference Sponsor, in conjunction with the MGAQ is an Enjo Kitchen Bundle valued at $179.00.

Please write a response to this question and submit it to: info@mgaq.org.au or post to PO Box 1287, New Farm 4005 by 10 December, 2019.

You are invited to the 2019 MGAQ Christmas Function

Sunday, 15 December - 11.30am for 12 noon

at Southport Sharks Club, Olsen Ave &, Musgrave Ave, Southport QLD 4215

RSVP: Susan Freecall 1800 802 568 - E: info@mgaq.org.au

Tuesday, December 10