21 {Aug}
The committee has established a lending library of MG and related information resources.
The collection is small but is expanding over time.
Loans of material are available to financial members of the Association and the loan period is 1 calendar month.
Postage out is paid by MGAQ and return postage is the responsibility of the member.
To request a loan, please contact John on (07) 3293 4655 or Email: jam3740@bigpond.com
URGENT – POSITION VACANT ON EXECUTIVE.
Legislatively, we MUST have a Secretary for the association. This person does not have to be highly skilled as the hand-over of responsibilities will be staggered with much support from other committee members. We are looking for someone who is prepared to accept responsibility, meet required timelines and is prepared to communicate in a timely manner with other members of the committee via phone calls and email.
MINUTES SECRETARY URGENTLY NEEDED.
21 {Aug}
The Myasthenia Gravis Association of Queensland Inc.
Annual General Meeting
WHEN: Sunday, 8 September - 10.00am for 10.15am sharp
WHERE: Aspley Hornets Football Club, 50 Graham Road, Carseldine
Lunch is available at the venue with a varied and reasonably priced menu. Tea and coffee will be available prior to the meeting.
10 {Aug}
After months of planning the 2019 MAA Myasthenia Gravis Conference was huge success! Such a lot of energy and conversation went into reaching out across Australia with New Zealand captured as well. The result was 147 registrations, reaching full capacity for our volunteer team.
The room looked great, the energy reverberated, and the presentations came quickly. It was a very special day for people with a rare disease to come together and realise that they were not alone.
10 {Aug}
Feedback from the day reflected the warmth and generosity offered by an amazing group of Specialists who shared their knowledge and compassion. Conversation from these Doctors included helping us to understand how Rituximab works, why there is a tightening guideline to IVIg prescriptions and why patients should not be fearful, what is Therapeutic Plasma Exchange, and can it be a possible option for some patients.
Myasthenia Gravis Friends Western Australia
Coffee & Chat
Sunday, 11 August at 2 pm - Pinnacles Restaurant
(upstairs in Myers) 200 Murray Street, Perth
23 {Jul}
We are seeking people with myasthenia gravis (MG) to help us better understand the impact of MG on levels of physical activity and sitting time.
Participation involves completing an online survey and wearing two small, lightweight activity monitors for seven consecutive days as you go about your normal day to day life, and then answering some questions about your activity levels.
For more information and to access the survey:
23 {Jul}
The Myasthenia Gravis Association of Queensland Inc.
Annual General Meeting
WHEN: Sunday, 8 September - 10.00am for 10.15am sharp
WHERE: Aspley Hornets Football Club, 50 Graham Road, Carseldine
Lunch is available at the venue with a varied and reasonably priced menu. Tea and coffee will be available prior to the meeting.
Welcome - Mrs Susan White MAA President, Mrs Carol Buchanan Conference MC
Dr Stefan Blum - “Overview of Myasthenia Gravis and its Therapies”
Dr James Morton - “Plasma Exchange and Other Advanced Therapies for Myasthenia Gravis”
Dr David McEniery - “Update on Myasthenia Gravis Survey”
Prof. Pam McCombe - “IVIg for Myasthenia - New IVIg Guidelines”
Dr Fiona Chan - “Rituximab as Treatment of Myasthenia Gravis”
Tahlia Alsop - UQ Physiotherapist and Researcher - Keeping Active is Important to your Mind and Body.
Assoc. Prof. Stephen Reddel - Research Discussion
Dr Stefan Blum - Sero-Negative: How does this Make Things More Difficult?
Prof. Pamela McCombe - Blood Bank and IVIg Your questions answered.
Nicole Millis - How the ‘Rare Voices Australia’ organisation can help people with Myasthenia Gravis
Please make a donation so that we can continue to provide support for Myasthenia Gravis in Queensland.
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