News

Who: Australian adults with a diagnosis of Myasthenia Gravis.

What: Complete an online survey (45-60 mins).

Why: To investigate knowledge and awareness of symptoms, and perspective on whether allied health services would assist in managing symptoms.

June 14, 2020 - 10.00am AEST

The Myasthenia Gravis Association of Queensland Inc. and Synergy Video are inviting you to a scheduled Zoom meeting - June 14 2020 @ 10am AEST

The author is A/Prof Stephen Reddel (Neurologist NSW). He is a member of the MAA Medical Advisory Board and we sincerely thank him for his guidance at this time.

Over the past couple of months we have discussed five series of new services, podcasts and vodcasts, to be delivered to members. For two of those series, namely ‘My Journey with Myasthenia’ and ‘Ask the Expert’ podcasts, we need help from each and every member.

THE eNID PROJECT

Because of the social distancing restrictions, the June MGAQ Members' Meeting will still go ahead using technology instead of face-to-face.

We have organised a Guest Speaker, Dr Angelo Contarino, Clinical Psychologist. His talk is “My Metropolis Journey with MG”. He will present via zoom webinar and there will be the facility for participants to ask questions of the presenter. 

The MAA continue to pursue the opportunity for more equitable access by the Myasthenia community to the treatment option, Rituximab/MabThera.

This month the story is ALL about the exciting opportunity to represent the Myasthenia Gravis Community in Canberra, celebrating Rare Diseases Day along with the Rare Voices Australia team. Witnessing the launch, from Health Minister Greg Hunt, of the National Strategic Action Plan for Rare Disease was a privilege. Strong bi-partisan support and commitment to this Action Plan was made evident in the speeches from Shadow Minister Chris Bowen,

Administered by the Myasthenia Gravis Association of Queensland Inc.

The Myasthenia Gravis Australia Parents & Grandparents Facebook page has been established for Parents and Grandparents of children (under 25 years old) diagnosed with Myasthenia Gravis.

In our February Newsletter, we talked about a new Podcast service for 2020 targeted to further improve members knowledge and understanding of matters related to their Myasthenia Gravis (MG). One of the podcast series is entitled ‘Ask the Expert’.

This Series allows members to ask general questions about MG, its impact and how to better cope, the various types of treatment options, etc. These questions will be incorporated into a recorded discussion with a relevant expert and from the recording, a podcast will be produced for distribution to members.