News

It’s that time of the year again when Membership Subscriptions for the financial year 2022/2023 are due. 
The envelope in which your newsletter is enclosed will advise you when your membership expires. If you look along the top line you should see “YOUR NAME” followed by some figures in smaller print than your address. 
If you receive the newsletter by email and are unsure whether or not you are currently financial, please phone our 1800 802 568 freecall number or email 
treasurer@mgaq.org.au to enquire. 

The work of the MAA is growing and expanding rapidly with Government and Industry seeking us out for community engagement feedback. Opportunities to develop services and research for the MG community are opening up. The MAA need manpower to take up everything that is offered. NSW now have 4 representatives on the Board but Queensland cannot match this and we need to step up.
If you have a passion to bring about change, if you have health or industry experience, this could be an exciting addition to your interests. It is not necessary for you to have Myasthenia.

Although raising awareness is not limited to one month a year, June is an opportunity to do that little bit more.

There are many ways you can raise awareness about Myasthenia Gravis...

What are you doing in June to help raise awareness?

Townsville    7-9 JUNE
Townsville sign
Victoria Bridge
Wharton Reef Lighthouse
George Roberts Bridge
Old Magistrates Court House
Little Fletcher Bridge

Brisbane    7-8 & 10-11 JUNE
Story Bridge
Victoria Bridge

Cairns    8-9 JUNE
Munro Martin Parkland

Ipswich    8-9 JUNE
Ipswich Civic Centre

Longreach    8-10 JUNE
Water Tower

Sunday, 13th June 2021 - 10am
at Hornets Football Club, Graham Road, Carseldine

COME ALONG - MEET IN PERSON
JOIN THE FESTIVITIES - EVERYONE WELCOME
(Available via ZOOM too - see Page 6 May Newsletter for details)

JUNE IS MYASTHENIA GRAVIS AWARENESS MONTH

LIGHT UP VENUES

Townsville    7-9 JUNE
Townsville sign
Victoria Bridge
Wharton Reef Lighthouse
George Roberts Bridge
Old Magistrates Court House
Little Fletcher Bridge

Brisbane    7-13 JUNE
Story Bridge
Victoria Bridge

Cairns    8-9 JUNE
Munro Martin Parkland

Ipswich    8-9 JUNE
Ipswich Civic Centre

Longreach    8-10 JUNE
Water Tower

Dr Stephen Reddel has shared an updated version of the COVID Vaccine Discussion Paper to reflect the issues raised about blood clots. Please note the advice for Myasthenia Gravis patients largely remains the same.

The updated paper can be downloaded here COVID-19 Vaccination Discussion NI v9 11052021

Consumer Research Survey - IVIg
If you would like to assist with the development of future resources for this valuable program, we are looking for people to share their experience of immunoglobulin treatments. Carers are also welcome to participate.
NPS MedicineWise is looking for people who have been prescribed immunoglobulins (antibodies) as part of their treatment to take part in a short survey online and/or an in-depth interview over the phone.

Management committee members as well as the regional co-ordinators, regularly suggest that people keep a diary of their symptoms, medications, lifestyle impacts etc. in preparation for their visits to the Doctor. 

In last month's newsletter, we advised that a new feature has been added to our podcast service whereby MGAQ Podcast subscribers would get an email when a new podcast was available. From this email, subscribers can just click and play that episode in their browser. One can also access all previous podcasts.