Our Annual General Meeting was held on Sunday, 9 September with approximately 30 people in attendance. A big thank you to those who made the effort to come and support your association. It was great to see that most people took the opportunity to stay for lunch and chat with friends old…
“A short email to the Qld Association on June 20th, followed by a reply indicating some possible options and suddenly Dylan has committed himself to running 5km in a Melbourne Fun Run raising money for myasthenia! He was motivated to commit to this opportunity out of care and concern for his father. Dylan explains the importance of knowing that support is available to all Australians. He has committed the funds raised to ensuring the continued operations of the Myasthenia Alliance Australia…
JULY’S TOPIC: The Onset Age and Duration of Symptoms!
MG affects both men and women and occurs across all racial and ethnic groups. It most commonly impacts young adult women (under 40) and older men (over 60), but it can occur at any age, including childhood. Myasthenia gravis is not inherited nor is it contagious. Occasionally, the disease may occur in more than one member of the same family.
More on this story, Page 4 of July’s Newsletter.
There are many groups out there for those who suffer with Myasthenia Gravis.
It is often underestimated how much support carers need and also that they have a place/forum where they can chat confidentially. Looking after someone with a chronic illness where there is no cure can be soul destroying.
This page allows carers to talk confidentially together.
So if you like me have a partner with MG and want to talk to others in the same boat . . . please come and join us…
The MGAQ is supporting the Myasthenia Alliance Australia in learning more about the difficulties Australians are facing in accessing treatment with the drug Rituximab / MabThera. The alliance is asking that anyone in Australia who has been offered, or is currently receiving this drug treatment, please complete this questionnaire.
Whilst there has been a good response to date, there are many more people who may be willing to share their experiences. Currently, responses are fairly…
Keep track of your important health information all in one place. For you and your family.
In mid-May, the Consumers Health Forum (CHF) issued a media release informing Australians of the date when they’ll be able to opt-out of having a My Health Record created for them. The first date that people can opt out is 16 July and ends on 15 October, 2018. One month after that October date, every Australian who has chosen not to opt out, will have a My Health Record created for them. Learn…
What you need to know about your MG subtype:
• The onset age and the duration of symptoms
• Ocular versus generalised
• The antibody involved (AChR, MuSK, others, seronegative)
• The thymus gland status (hyperplasia, tumor, normal)
• The treatment response (non-refractory, versus refractory) - Every medication you have tried for MG and the outcome.
In the coming months, we will focus on helping YOU better understand YOUR…