News

June Awareness Month was extended! 
How exciting that there is a huge push across the nation for greater Awareness of Myasthenia Gravis. It happened in June with wonderful Light Ups across Queensland and in other cities throughout Australia. This is definitely a growing campaign. Well done to the MGAQ for adding new sites again this year and for having signage prominently displayed on the Story Bridge in Brisbane and on the Bruce Highway at Glenorchy (South of Maryborough). 
 

Myasthenia Gravis Inc (Vic) has arrived! Joining other states throughout Australia, Victoria is now up and running. 
As a Not For Profit and an advocacy voice for Myasthenia Gravis sufferers, the aim of the group is to raise awareness  and assist those with MG where it can. Working alongside other established groups and committees that have been running for some time we will all come together to form a great knowledge group.

"The Myasthenia Alliance Australia (MAA) are very proud to continue the good work occurring with International June MG Awareness Month and delight in announcing the launch of an Australia wide "Art With Heart” Auction campaign in support of our condition. This Auction will run through until October and will have a focus on Art Therapy with the lead item for the Auction being a painting by our very own, Lyn Church.

(Myasthenia Gravis, Lambert Eaton Syndrome or Congenital Myasthenic Syndrome)?
The impact of the Coronavirus disease (COVID-19) pandemic on myasthenia gravis patients in an Australian population: a nation-wide observational study 
Your experience of the pandemic is critical to help your doctors and the public understand the impact of the pandemic on your wellbeing.
To complete a short survey (takes under 15 minutes) begin here:

June is International Myasthenia Gravis Awareness Month.

June Awareness month for Myasthenia Gravis is worldwide and MGAQ has organised through local Councils and private organisations to “Light Up” landmarks in recognition of Myasthenia. Please go and view these landmarks. Take a moment to reflect on your MG journey.
Capture the image and share so Myasthenia can gain more awareness in the community.
This will help with research. This will help you with your MG journey.

Where to begin! The agenda for the recent MAA Board meeting included 29 items of general business! We are certainly spread across many areas of Research, Advocacy and Awareness. It was an exciting meeting as the Board realised the momentum that is now behind our work.

Hey everyone, let me introduce myself. My name is Chloe Wigg and I am a visual artist and person with MG. I have done a number of exhibitions focusing on resilience and I am an advocate for those with invisible disabilities.
I am going to be working on a project over the next few years and am looking for 2000 empty mestinon bottles (bottles, lids, the whole kit and kaboodle).
They can be the timespan bottles, instant release 60mg, 10mg bottles or any other strength bottles.

Our patient-reported outcome survey closes on 28 January 2022 so this is your last chance to make sure you complete it: https://redcap-bdsi.anu.edu.au/surveys/?s=PWPFW73R73 

Dr Stephen Reddel would like to draw attention to the announcement made by ATAGI in regard to a booster Covid Vaccination for people who receive immune-suppressing treatment.

You're invited to the MGAQ Christmas Function
to be held at
Caloundra Power Boat Club
2 Lamerough Parade, Golden Beach
on 
Sunday, 12 December, 11.30 am lunch sitting
 

For more information / RSVP - Contact Susan
Email: info@mgaq.org.au • Freecall 1800 802 568