Tahlia Alsop - UQ Physiotherapist and Researcher - Keeping Active is Important to your Mind and Body.
Assoc. Prof. Stephen Reddel - Research Discussion
Dr Stefan Blum - Sero-Negative: How does this Make Things More Difficult?
Prof. Pamela McCombe - Blood Bank and IVIg Your questions answered.
Nicole Millis - How the ‘Rare Voices Australia’ organisation can help people…
You only have until Friday, 12 July to register for this unique chance to hear from 12 speakers on 22 topics talk about the different Myasthenias and aspects of living with/caring for MG sufferers, the latest treatment options and areas of research into MG.
For more information about the conference or your interest to register,
Freecall: 1800 802 568 or Email: firstname.lastname@example.org.
The MAA website has been upgraded and it is fantastic.
Do check it out by visiting www.myastheniaallianceaustralia.com.au
This wonderful work has been gifted to the Alliance by Anna Wilen Clarke. A graphic designer by trade and a generous supporter of the Alliance she saw the great need and responded to the challenge. Work progressed quickly and the new site is full of great features. Our most sincere appreciation is extended to Anna. Her skill…
To celebrate Awareness Month the Committee again hosted a function on Sunday, 9 June allowing people with Myasthenia to gather together and to share. Well attended by regulars and by first timers, we gave hugs, wore teal ribbons, won lucky door prizes, shared a meal and conversation and came away much better informed.
Tracey Shaw from Carers Qld, spoke with kindness as she discussed the importance of supporting the people who support those with Myasthenia. It is…
PHYSICAL ACTIVITY, QUALITY OF LIFE, FATIGUE AND FUNCTION IN MYASTHENIA GRAVIS
Researchers at the School of Health and Rehabilitation Sciences (SHRS) at the University of Queensland are seeking individuals with myasthenia gravis to participate in a study investigating levels of physical activity and sitting time and their relationship with fatigue, quality of life and functional mobility. There is a substantial amount of evidence indicating that…
Listen to ABC Radio 612 Brisbane, 10am, this Friday, June 14 during Rebecca Levingston’s programme to hear Dr Stefan Blum, along with member Karen Downes discuss Myasthenia Awareness month, the work of the Association, the forthcoming Conference and the condition in general.
You can listen the interview online via your phone or computer: https://www.abc.net.au/radio/brisbane/live/
If you miss Rebecca's programme, the…
Myasthenia Gravis Association of Queensland Inc.
WHEN: Sunday, 9 June, 2019 - 10am for 10.30am start
WHERE: Southern Cross Sports Club:
Corner Klumpp and Logan Rds, Mt.Gravatt (vehicular entrance is from Klumpp Rd).
Lunch is available…
2019 MYASTHENIA ALLIANCE AUSTRALIA
MYASTHENIA GRAVIS CONFERENCE
Preliminary Conference Program
• Dr. Stefan Blum
Overview of Myasthenia Gravis and Therapies.
• Assoc. Prof. Stephen Reddel
Rationale and Progress on the eNID Project.
Risks of Immunosuppression.
MEMBERSHIP SUBSCRIPTION RENEWAL
It’s that time of the year again, when Membership Subscriptions for the financial year 2019/2020 are due.
The envelope in which your newsletter is enclosed will advise you when your membership expires. If you look along the top line you should see “YOUR NAME” followed by some figures in smaller print than your address.
If you receive the…
Preparations for the 2019 National Myasthenia Conference continue as registrations come in steadily. It is very exciting to see people coming from Victoria, New Zealand, NSW, ACT and of course, Queensland. It is hoped that there will also be attendees from South Australia, Western Australia and Tasmania. Facilitating the 'meeting of others' from each region will be a focus for the organisers. Making contact with people who share similar experiences will also be important. This…