News

It’s almost here! In just 11 days, the MGAQ is proud to host a special Celebration Day for Chloe’s inspiring “Oh MG” Art Exhibition, and you’re warmly invited.

Bring your family, friends, and medical team to experience a powerful showcase that celebrates the strength, resilience, and creativity of the Myasthenia Gravis (MG) community.

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Late last year, many people in our community participated in a survey conducted by Alexion Pharmaceuticals about the impact of generalised Myasthenia Gravis (gMG) on daily life and experiences with healthcare professionals. 
 
The survey found gMG has a significant impact on people’s social, personal and professional life with one in two retiring early. Restricted social life, loss of independence and the ability to plan activities were the most reported impacts.

Living with MG means navigating a complex treatment journey. While we’ve come a long way with effective therapies like steroids, immunosuppressants, IVIG, and surgery, not all patients respond the same way.

The MAA has partnered with the Edith Cowan University to conduct research on exploring the lived experience of people living with Myasthenia Gravis. The research team is led by Associate Professor Christopher Kueh.

Our project focuses on understanding the experiences of individuals living with Myasthenia Gravis (MG) in Australia. We want to know about the journey of getting diagnosed with MG, living with the condition, and what a typical day looks like for those affected. 

RARE DISEASE DAY | FRIDAY 28 FEB. 2025