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The Myasthenia Alliance Australia (MAA) supports and promotes research that is specific to the experience of Myasthenia Gravis (MG) patients in Australia. But we would not be able to do this without the essential and valuable contribution of Australians with MG.

To Australians with Myasthenia, the following is a message from Dr Carolina Barnette-Tapia MD, PhD of Canada.

The MAA thank Australians for their interest in supporting this project. Responses will be welcomed until early September 2024. Information about the outcomes resulting from this research has been requested.

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The MAA first engaged with Amplo Biotechnologies at the 2019 Brisbane Conference. We are delighted to report that Patricio Sepulveda, CEO, is offering to share updated information on “what they are doing and where they are at”. Patricio reports that 35 different genes have now been identified to capture more people with Congenital Myasthenia Syndrome. This knowledge is important in providing the correct treatment. Patients, Clinicians and Carers are invited to attend the following information sessions.

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Both artists have very generously removed their reserve price in support of Myasthenia patients.
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Don't be slow! Bidding closes 29th June

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A new treatment for AChR+ generalised MG, Zilucoplan (brand name Zilbrysq ®) is on the agenda for the next Pharmaceutical Benefits Advisory Committee (PBAC) meeting.

The MAA is working with Monash University researchers on the VALUE-Ig project. We are looking for MG patients to participate in a focus group to help design a study about patient preferences on treatments. This is an opportunity to provide input before the research is carried out and we invite you to take part.

Our Guest Speaker for the June Awareness Function is

DARE your friends and family to CARE about making a difference for people with Myasthenia Gravis.

You are the difference that drives us!

The Myasthenia Alliance Australia (MAA) is very proud to continue the good work occurring with International June MG Awareness Month and delight in announcing the launch of an Australia wide “Art With Heart” Auction in support of our condition. This has been a major undertaking of the MAA with its second year running.

Dear Myasthenia Gravis Community,

Dear MG Community,

You hopefully received recent communication from the Myasthenia Alliance Australia (MAA) about the current opportunity to make a submission to the Pharmaceutical Benefits Advisory Committee (PBAC) for a new treatment called Ravulizumab.