After months of planning the 2019 MAA Myasthenia Gravis Conference was huge success! Such a lot of energy and conversation went into reaching out across Australia with New Zealand captured as well. The result was 147 registrations, reaching full capacity for our volunteer team.
The room looked great, the energy reverberated, and the…
Feedback from the day reflected the warmth and generosity offered by an amazing group of Specialists who shared their knowledge and compassion. Conversation from these Doctors included helping us to understand how Rituximab works, why there is a tightening guideline to IVIg prescriptions and why patients should not be fearful, what is Therapeutic Plasma Exchange, and can it be a possible option for some patients. …
Myasthenia Gravis Friends Western Australia
Coffee & Chat
Sunday, 11 August at 2 pm - Pinnacles Restaurant
(upstairs in Myers) 200 Murray Street, Perth
We are seeking people with myasthenia gravis (MG) to help us better understand the impact of MG on levels of physical activity and sitting time.
Participation involves completing an online survey and wearing two small, lightweight activity monitors for seven consecutive days as you go about your normal day to day life, and then answering some questions about your activity levels.
For more information and to access the survey:…
MGAQ Annual General Meeting
The Myasthenia Gravis Association of Queensland Inc.
Annual General Meeting
WHEN: Sunday, 8 September - 10.00am for 10.15am sharp
WHERE: Aspley Hornets Football Club, 50 Graham Road, Carseldine
Lunch is available at the venue with a varied and reasonably priced menu. Tea and coffee will…
You only have until Friday, 12 July to register for this unique chance to hear from 12 speakers on 22 topics talk about the different Myasthenias and aspects of living with/caring for MG sufferers, the latest treatment options and areas of research into MG.
For more information about the conference or your interest to register,
Freecall: 1800 802 568 or Email: firstname.lastname@example.org.
Welcome - Mrs Susan White MAA President, Mrs Carol Buchanan Conference MC
Dr Stefan Blum - “Overview of Myasthenia Gravis and its Therapies”
Dr James Morton - “Plasma Exchange and Other Advanced Therapies for Myasthenia Gravis”
Dr David McEniery - “Update on Myasthenia Gravis Survey”
Prof. Pam McCombe - “IVIg for Myasthenia - New IVIg Guidelines”…
Tahlia Alsop - UQ Physiotherapist and Researcher - Keeping Active is Important to your Mind and Body.
Assoc. Prof. Stephen Reddel - Research Discussion
Dr Stefan Blum - Sero-Negative: How does this Make Things More Difficult?
Prof. Pamela McCombe - Blood Bank and IVIg Your questions answered.
Nicole Millis - How the ‘Rare Voices Australia’ organisation can help people…
The MAA website has been upgraded and it is fantastic.
Do check it out by visiting www.myastheniaallianceaustralia.com.au
This wonderful work has been gifted to the Alliance by Anna Wilen Clarke. A graphic designer by trade and a generous supporter of the Alliance she saw the great need and responded to the challenge. Work progressed quickly and the new site is full of great features. Our most sincere appreciation is extended to Anna. Her skill…
To celebrate Awareness Month the Committee again hosted a function on Sunday, 9 June allowing people with Myasthenia to gather together and to share. Well attended by regulars and by first timers, we gave hugs, wore teal ribbons, won lucky door prizes, shared a meal and conversation and came away much better informed.
Tracey Shaw from Carers Qld, spoke with kindness as she discussed the importance of supporting the people who support those with Myasthenia. It is…