Conversations with the 'eNID Project Working Group’ continued this month. MSBase confirm that their work is progressing as outlined in the Project Update included in the October newsletter. Confirmation regarding funding support from the Pharmaceutical Companies is still pending.

The MAA have indicated to the working group that we are committed to raising a further $45,000.00 as requested.
See below for an indication of our progress. 

For people interested in…

12 noon, Saturday, 24 November,
The Avenues Hotel, 270 Kern Bros Drive, Kirwan

The management committee feels it is important for members from across the state to meet and chat with some of our committee.
Therefore, over a period of time, two members from the management committee will travel to each of the areas.
The regional co-ordinators will negotiate with the committee re the most suitable time of the year and these will be advertised…

The Alliance Committee have been meeting at least once a month for the majority of this year and working diligently for its supporters between times. Current projects include planning for a conference in 2019. We are working with Dr Blum to create a Brisbane conference mid 2019. Dr Blum is also chairperson of the newly formed Medical Advisory Group available to the Alliance committee for advice on Myasthenia related issues. We thank him for his particular interest in the work of the Alliance…

A questionnaire was made available regarding access to this treatment option. Many people responded and the shared information was diverse. Many people have not been offered this treatment. For some, it has been discussed but it has not been a viable choice for varying reasons. For others, this treatment has been used and for most it has been provided by a major hospital for no or little cost to the patient. There are a number of people who have chosen this treatment but…

An unfortunate media release occurred in July this year. In discussing the Sexually Transmitted Infection, Mycoplasma genitalium (Mgen), a reference was made to this condition using the acronym MG. This is not the standard abbreviation used for this condition but unfortunately it was picked up by the journalists as a good headline. The article was shared with multiple media outlets and came to our attention via concerned members. Many letters have been sent from the Alliance highlighting the…

I have been a longtime receiver of the great benefits of Pilates exercises. During that that time I had the privilege of attending so called “Clinical Private Consultations”
As discussed in last month’s newsletter, the Committee anticipated becoming more involved with the MSBase working group for the eNID project. This
- Current financial members should have received a copy, either by mail or email, of the President’s

Since the newsletter went to publication we have been very lucky to have someone nominate for the permanent position of Secretary of the MGAQ.  More on this in the next newsletter.


MAA News

Conference: Dr Blum is again the Chairperson for the Neuro-Immunology Association who hold a conference every second year. With the Doctors gathered for this conference, it has previously presented an opportunity for our conference to follow. Dr Blum is happy to work towards this objective being achieved again in 2019. He will work towards creating a Brisbane Conference in mid-2019.


Medical Advisory Group for Myasthenics : The Committee drafted a 'Terms of…