News

Dear MG Community, 

The Myasthenia Alliance Australia (MAA) is sharing the attached information with you about the current opportunity to make a personal submission to the Pharmaceutical Benefits Advisory Committee (PBAC) about a new treatment called Ravulizumab. The deadline for submissions is 31 January 2024 and we will share more information in the new year. 

May we also take this opportunity to wish you a safe, happy, and relaxing festive season and we look forward to continue supporting you and being in touch in 2024. 

The MAA are proud to announce that the Patient Reported Outcomes Study, which was strongly supported by the Australian Myasthenia community, is now referenced via an article in the Journal of Clinical Neurosciences - Clinical features, treatments, their impact, and Quality of Life for Myasthenia Gravis patients in Australia.

We congratulate the researchers Janet Sansoni, Nidhi Menon, Lachlan Viali, Susan White and Steve Vucic for their contribution of significant time and much diligence which has resulted in this comprehensive and impactful document.

Registrations for the MAA October 21st 2023 Conference to be held in Sydney are now rising steadily with representation coming from every State and Territory (except NT so far) and also New Zealand.

Registrations are now open for the 2023 Myasthenia Gravis Conference, to be held at the
Concord Hospital Education Centre, Sydney on
Saturday October 21 2023 
9.00am to 4.30pm

The Registration Pack (which includes the Registration Form) can be downloaded from MAA Conference 2023 - Registration Pack

Helen T is a regular contributor to the MGAQ monthly newsletter. Helen’s stories are reflective and uplifting.   Six of her stories from 2022 have been collated into a podcast for members and was published on 22 May 2023.
All financial members of MGAQ have access to all the podcasts at www.mgaq.org.au
For more information, please email info@mgaq.org.au or call 1800 802 568.

June is Myasthenia Awareness Month
COME ALONG - MEET IN PERSON
Sunday 11th June – 10am for 10.15am START
Hornet’s Football Club, Graham Road, Carseldine
Guest Speaker:
Dr Reuben Beer BPharm MBBS FRACP, Neurologist
Topic: “Current Treatments for Myasthenia Gravis”
RSVP is essential and open until Saturday 10th June
Email info@mgaq.org.au or phone Susan 1800 802 568 to attend or ask question

The MGAQ Banner will be displayed on the Story Bridge in Brisbane (inbound)
from 29 May to 11 June.
 

Saturday, October 21 2023

Myasthenia Conference Sydney

Concord Hospital - Education Centre
9.00am to 4.30pm

(Parking available) 
“Attendance by Application”

June is International Myasthenia Gravis Awareness Month.
June Awareness month for Myasthenia Gravis is worldwide and MGAQ has organised through local
Councils and private organisations to “Light Up” landmarks in recognition of Myasthenia. Please go
and view these landmarks. Take a moment to reflect on your myasthenia journey. Capture the image
and share so myasthenia can gain more awareness in the community. This will help research. This
will help you with your myasthenia journey.
Brisbane – Friday 2nd June

Saturday, October 21 2023
 

MAA Myasthenia Conference, Sydney

“Attendance by Application”