News

The MAA would like to hear from ALL Australians diagnosed with CMS. We need to capture your numbers (parents/guardians can respond on behalf of children). We also want to learn about your experiences here in Australia regarding accessing Ruzurgi/Amifampridine/3,4-DAP as a treatment option.

Myasthenia Alliance Australia is delighted to remind our community of an important upcoming event.

📅 Date: Monday 15 September
🕛 Time: 12:30pm - 2:00pm
📍 Location: Rydges South Bank, Brisbane

In May this year, people who are both a patient and patient advocate or representative came together in Den Haag, in The Netherlands. We came from about 15 different countries. I had not met one of them before arriving there, and yet I felt immediately at home.

The MAA captured some invaluable information about our community as a part of the webinar hosted in January 2025. The webinar heard from leading Specialists who explained the new treatments which are currently seeking PBS funding. This webinar can be viewed here.

The Myasthenia Alliance Australia are delighted to announce an in-person event to be hosted in Brisbane on Monday September 15th from 12 midday. 

As the Myasthenia Alliance Australia (MAA) marks over ten years of advocacy, research, and awareness, our latest Achievements Poster offers a powerful snapshot of what a committed patient-led movement can accomplish.

MGBase Launch Paper Now Published

Myasthenia Gravis Awareness Month went to a new level this year with the Oh MG Art Exhibition held at the Logan Art Gallery in Brisbane. 

The VALUE-MG research team have provided an update on an important co-designed study that is looking at what people with MG value most when it comes to treatments.

Thank you to all MG patients who have contributed to this research so far. 

Study Update: